A day in the life of every person living with T1D…it’s more complex than people realize

 

Type 1 diabetes (T1D) has affected my life since the day I was born. It is, in fact, the reason why I was born. You see, my parents lost their first-born and only son to T1D when he was just eight years old. I was born eighteen months later to parents already in their forties.

My parents gave me life to replace the life they had lost.

Ten years after that first shocking diagnosis of T1D in our family, my oldest sister was also diagnosed with the disease at age sixteen. Now the deep sorrow that my family had experienced at my brother’s sudden death was coupled with intense fear. Fear that yet another family member would be diagnosed with T1D.

In 2002, my middle son was diagnosed with T1D at age five.

Since his diagnosis, I have dedicated myself to doing all I can to find a cure for this complicated and insidious auto-immune disease. By fundraising, advocating before my elected officials, and sharing my story of hope amidst the sorrow, I’m proud to say we are closer than ever before to a cure.

I’m always willing  to share my story in person, to audiences large and small. If you’re interested in having me speak to your group please contact me. I was the Fund-A-Cure speaker at the 2012 JDRF Promise Ball in Philadelphia. At this event we raised over $1.2M.

Here are a few of the articles I have written about being a parent of a child with T1D:

The Day My Son’s Endo Kicked Me Out –  my experience of transitioning my son to an adult endocrinologist.

What Saved My Son’s Life–  the importance of having glucagon handy, especially when traveling.

The Stomach Flu Away From Home – getting the stomach flu in college and how to be prepared.

A Walk to Remember

A Walk to Remember

  The rain fell in continuous sheets that week, as it had for most of the summer and early autumn. Every day I checked the weather report, wondering if this would be the first year we would walk in the rain at the annual JDRF Walk to Cure Diabetes. But Walk...

Through a Child’s Eyes

Through a Child’s Eyes

  This photo has stood sentry on my dressing table for as long as I can remember. It’s one of those cheesy shopping mall photos - the Christmas tree isn’t real, but the smiles on my boys’ faces certainly are. In the eyes of the one, I see the strength and...

Fear

Fear

  I had walked underneath this tree countless times over the years. On every daily neighborhood walk with my trusted four-footed friend. Every Sunday afternoon walk with my husband. Every walk with my daughter, lacrosse stick in hand, ball bouncing.  ...

The Gorge

The Gorge

  I have recently discovered Ithaca, NY and must confess that I am smitten by its natural beauty. My visits began two years ago when my daughter committed to play lacrosse at Cornell University. Several times a year we would travel to Ithaca for her to attend...

Life, Interrupted

Life, Interrupted

  Life has a funny way of interrupting our best-made plans.   It was supposed to have been a glorious season. A capstone season. An icing on the cake, cherry on top of the sundae season. After working harder than she had ever worked, being in the best...

What am I Leaning On?

What am I Leaning On?

  Last week I buried my beloved father. The lone bagpiper stood sentry, beckoning us closer, as the familiar strains of Amazing Grace echoed in the open cemetery. The once cloudy skies gave way to a brilliant January sun as we approached my father’s final...

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