How to Handle Fear in Managing Your Child’s T1D

When my son was diagnosed with type 1 diabetes at age five, I thought the greatest fear in managing my child’s T1D would be injecting him with insulin. I would soon discover there were far greater fears awaiting me as his caregiver.

“What if his blood sugar drops precipitously low while I’m sleeping?” 

“What if I can’t control his ketones and blood sugars when he has a stomach virus?” 

“And what if I don’t manage his blood sugars tightly enough when he’s young?” 

I carry fear with me as a fire between my temples, a tornado deep in my gut. Awash with fear, it’s easy to descend from the present into an imagined world of what-ifs.

Fear is a cloaked villain, lurking in the shadowlands of our minds. Catching us by surprise, fear for our child’s safety can overwhelm our thoughts, locking us in repeating mental loops. Once that unseen villain kidnaps our thoughts, how do we escape his suffocating stranglehold? Next time the fear villain shows up unbidden, try these simple steps to send him packing.

Acknowledge your fear in managing your child’s T1D

So often we feel the emotion without taking the time to name it. We hope by ignoring it, it will go away, when actually, the opposite is true. The more we ignore fear, the more influence it has over us. Instead of ignoring fear, face it. Sit with it. Name its source by identifying the roots of your fear. You may be surprised to discover you’ve carried this same type of fear for a long time, even before your child’s diagnosis. Talk about your fears with a trusted friend, a therapist, or a spiritual director. 

Lean on meditation or prayer when fear rises up and feels beyond your control

When we’re deeply afraid, we naturally experience an accelerated heartrate because our body’s sympathetic nervous system activates its natural defensive mechanisms. Once put into motion, we experience increased pulse and breathing rates, elevated blood pressure, and tensed muscles. Intentionally breathing slowly and deeply activates the parasympathetic nervous system, calming the body by decreasing blood pressure, heart and breathing rates, and relaxing tense muscles. Deep breathing exercises associated with meditation and the slow breath prayers practiced in many Christian traditions help calm our body when fear surges. 

Stay present

We fear what we suspect might happen in the future. When we stay grounded in the present, it’s harder for our thoughts to slip away into unchartered territory. Practicing centering prayer or mindfulness helps us grow in our ability to stay present and teaches us how to reel our thoughts back in if they begin to stray too far into what-if scenarios. When fear overtakes you, take some time to focus on the present by repeating the word or phrase you use in centering prayer or mindfulness. During the current covid-19 pandemic, my centering phrase has been, “The Lord is my shepherd.” Prayed slowly, in the rhythm of a deep in-breath followed by a deep out-breath, my heart rate slows, my mind settles, and I stay grounded in the present.

Practice letting go of perfection

No one gets everything “right.” Making any decision involves trade-offs. You have an awesome responsibility caring for your child’s chronic illness, but you can’t determine and control all outcomes affecting her. Some of us naturally have a higher desire for control than others do. If that’s you, remind yourself frequently that you’re doing the best you can, but ultimately, you’re not in control of all things. Releasing control is not a weakness; it could become your greatest strength. Give yourself permission to release control and then visualize yourself letting go.

And when fear rises up in the middle of the night, take a few deep breaths and allow your centering word to carry you back to the present, away from the fear. 

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