A day in the life of every person living with T1D…it’s more complex than people realize
Type 1 diabetes (T1D) has affected my life since the day I was born. It is, in fact, the reason why I was born. You see, my parents lost their first-born and only son to T1D when he was just eight years old. I was born eighteen months later to parents already in their forties.
My parents gave me life to replace the life they had lost.
Ten years after that first shocking diagnosis of T1D in our family, my oldest sister was also diagnosed with the disease at age sixteen. Now the deep sorrow that my family had experienced at my brother’s sudden death was coupled with intense fear. Fear that yet another family member would be diagnosed with T1D.
In 2002, my middle son was diagnosed with T1D at age five.
Since his diagnosis, I have dedicated myself to doing all I can to find a cure for this complicated and insidious auto-immune disease. By fundraising, advocating before my elected officials, and sharing my story of hope amidst the sorrow, I’m proud to say we are closer than ever before to a cure.
I’m always willing to share my story in person, to audiences large and small. If you’re interested in having me speak to your group please contact me. Here is a video of me sharing my story as the Fund-A-Cure speaker at the 2012 JDRF Promise Ball in Philadelphia where we raised over $1.2M.
Here are a few of the articles I have written about being a parent of a child with T1D:
The Day My Son’s Endo Kicked Me Out – my experience of transitioning my son to an adult endocrinologist.
What Saved My Son’s Life– the importance of having glucagon handy, especially when traveling.
The Stomach Flu Away From Home – getting the stomach flu in college and how to be prepared.